Autism awareness “elevator pitch” (reprint)

I’m reposting this article because I think it is doubly relevant today: 1) it is autism awareness month; and 2) this is as much an issue today as it was last year. Again, it was a post from Kristina Chew that prompted me to repost this. (Thanks Kristina!)

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In her recent post Autism Speaks Now, Kristina Chew contemplates the discrepancies between the types of autism research actually being conducted and the types of autism research that are covered in the media (my emphasis):

[A] study by Stanford University researchers published in the February Nature Reviews Neuroscience notes, brain and behavior research on autism accounts for 41 percent of research funding and published scientific papers and only 11 percent of newspaper stories in the United States, United Kingdom and Canada. In contrast, 13 percent of published research was on environmental causes of autism but 48 percent of the media coverage was on this topic: When it comes to reporting on autism, there is a serious gap between scientific research and the mass media; in the case of some reporting on thimerasol and autism, parents are pitted against scientists. Autism Speaks, with its access to the full power of the media, will be getting its message out.

Kristina goes on to ask how scientists (and, by extension, we) can overcome this issue (emphasis is again mine).

I would be curious as to how scientists might “frame” some “hot button” issues in autism: As the back-and-forth in the comments on a post about David Kirby and Autism Speaks, facts and research studies can be cited, but people’s beliefs are not so easily swayed. What are vaccines and chelation but “highly politicized topics” in autism circles? How might a scientist refute such theories and treatments by “strategically avoid[ing] emphasizing the technical details of science”; by translating technical knowledge with an eye to the fact that this alone does not “drive decision-making or change minds”? It needs to be recognized that, when it comes to understanding autism, parents do not rely on facts and evidence and science alone; that emotions—however much acknowledged, or not—play a huge role.

We have to remember, too, that last sentence applies not only to parents but to the media who would reach those parents. And also to the people who are trying to get these parents to give money to pursue a cause.

To reach these people, you need to be able to get your message across quickly, to the point, and convincingly. While it may be possible to get the point across convincingly using the scientific data as a basis, this will not likely be either quick or to the point.

What we need is an “autism awareness elevator pitch.” Imagine you find yourself on the elevator with Oprah’s producer (to follow the thread started by Kristina), and you have until you get to the top floor to explain why Oprah should dedicate an hour to your view of autism. Here’s the quick sound byte that probably helped get Autism Speaks onto Oprah:

This is the national health crisis of our time……..This is bigger than AIDS. This is bigger than breast cancer, and almost no attention seems to be paid to it.

There a lot of ways to approach this (scientist, parent, autistic), I want to hear them all.

So…, what’s your pitch?

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7 thoughts on “Autism awareness “elevator pitch” (reprint)

  1. The next march through Selma will not be about the civil rights of race, but about advancing the much-needed civil rights to those who think and feel and see the world a little differently —– our autistic citizens. Think Peace. Think Goodness. Think Neurodiversity.

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  2. I’d be sure to have my Kanner cutie in tow in the elevator. I’m not much of a “pitcher”, but my main point of contention with the 2 shows Oprah has made RE Autism is that they’ve left out Autistics. I’d like to see a range of people on the spectrum, to illustrate the variety within ASDs. Levels of functioning, modes of communication, experience with treatments, stance on cure. I’d be happy to hear more than my own perspective if the people sharing it are insiders.

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  3. Well what do you know! Oprah MADE the show I want to see about Autism, except it was about dwarfism and living with/adapting to/accepting differences. It starred the very engaging Roloff family who are spreading awareness with their reality show, Little People Big World. Oprah closed the segment by saying, “differences are normal”.
    I’d like her to portray a family like mine that way.
    Second segment featured the ratings grabbing Jonas Brothers.

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  4. Suzanne, it sounds like it might be time to send Oprah a letter (or two or a hundred or …) asking her to do for autism what she’s done for dwarfism.

    Or, maybe an autism based reality show….

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  5. ok…. i pitched it via email. Autistic reality show…. ,um… I can’t see it. Still, I’d like to see her talk to autistic adults, if she can without having Jenny on.

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  6. I’d sing the “The Mad Hatter” song off the “Countdown to Midnight” CD by Elyse Bruce. The song is all about how everyone gives autistic moms the run-around while trying to get services for their autistic kids. The CD itself raises funds and awareness for autism.

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